                   |
Patient Program Overview
The goals of the patient program elements are to inform attendees about the latest findings in lupus
research and review current clinical practices, trials and treatments; as well as to provide multiple
opportunities for patients and lupus experts to interact in formal and informal panel settings and joint
plenary sessions.
Themes and topics are in planning which reflect the interests of respondents to surveys from over 140
lupus organizations around the globe. Program content will be presented under three broad categories:
I. Understanding Lupus – Themes will include symptoms, diagnosing and treating lupus, and how lupus
affects children, and men.
II. What is Current – The latest research to better understand lupus, and promising efforts to find new
treatments will be explored. Activities of Lupus International Organizations will also be discussed with
representatives of lupus societies from around the world.
III. Living with Lupus – Patient participants will explore with lupus experts the latest in nutrition
and diet, coping with stress, exercise and fitness, pregnancy and lupus, how lupus impacts the family,
and lupus in the workplace.
Preliminary Schedule for Patient Congress: subject to change
Patient Rest Area Hours
Location: Parkview Terrace - South Foyer
Thursday, June 24
12:00 - 19:30
Friday, June 25
07:00 - 17:00
Saturday, June 26
07:00 - 18:00
Thursday, June 24th 2010
Location: Meeting Rooms 1,2,3 unless otherwise indicated
12:45 - 15:00 Special Symposium: Narrowing the Gap in the Treatment and Study
of SLE Worldwide - Open to all delegates of the Patient Congress and the Scientific Congress
Location: Exhibit Hall A
15:00 - 15:30 Break
15:30 - 15:45 Opening of Patient Congress
Josie Bradley, President, Lupus Society Vancouver
Information about Vancouver and the Congress and introduction of the leaders of Canadian
Lupus Groups
15:45 - 16:00 Update on World Lupus Collaboration Initiative
Sandra Raymond, CEO, Lupus Foundation of America
Summary of Collaborative Initiatives around the world and introduction of other International
Voluntary Leaders.
16:00 - 17:30 New Drugs in Development
Moderators: Joan T. Merrill, Oklahoma City, OK and Josie Bradley, Lupus Society of Vancouver
A brief overview of the process by which new treatments are developed and tested will be followed
by presentations by people from major pharmaceutical companies about the specific new treatments for
lupus that are currently under study. Time will be set aside for people in the audience to ask questions
and/or comment on issues they might face or concerns they might have about trial participation.
17:30 - 19:30 Break
19:30 - 21:30 Welcome Reception
Location: Pan Pacific Hotel - Atrium
Friday, June 25th 2010 - Patient Congress Day 1
Location: Meeting Rooms 1,2,3 unless otherwise indicated
06:00 - 06:45 Walk Together for Lupus - Open to all delegates of the Patient
Congress and the Scientific Congress
Meet time: 06:00
Location: Vancouver Convention Centre East Lobby
After the walk, for those who came a long way and don’t have a nearby hotel the exhibit area and
rest areas will be open until the patient congress starts
08:00 - 09:30 Plenary Session 2 - Lupus 2010 - The State of the Art - Open to all delegates of the Patient
Congress and the Scientific Congress
Location: Exhibit Hall A
09:30 - 10:00 Break
10:00 - 12:15 Patient Congress Symposium 1
Dr. Graham Hughes, The Rayne Institute, London, UK - “How do you know if you have the
antiphospholipid syndrome and how to take care of yourself if you do”
Dr. Ellen Ginzler, SUNY Downstate Medical Center, New York City USA - “Treatments for nephritis
in the 21st Century”
Marisa Klein Gitelman Northwestern University, Chicago USA - Pediatric Lupus with relevance to
adults: including “How can we take steps to minimize the longterm risks from our medical care of
children with lupus?”
12:15 - 13:30 Boxed Lunch Pickup
Location: Exhibit Hall B
13:30 - 15:30 Cafe Scientific 1
Moderator: Dr. Paul Fortin, University of Toronto, Toronto Ontario CA
Speakers: Dr. Anne Clarke, McGill University, Montreal, Quebec, CA Dr. Michelle Petri, Johns Hopkins University, Baltimore, MD USA
Dr. Jim Oates, University of South Carolina, Columbia South Carolina USA
Update on progress in lupus with focus on answering questions from the audience
15:30 - 16:00 Tea and Networking
Location: Exhibit Hall B
Mingling of Patient Congress Delegates and Scientific Congress Delegates
16:00 - 17:00 Worldwide Lupus Voluntary Initiative
Moderator: Sandra Raymond
Speakers: TBD
Saturday, June 26th 2010 - Patient Congress Day 2
Location: Meetings Rooms 1,2,3 unless otherwise indicated
09:30 - 10:00 Networking
Location: Exhibit Hall B
10:00 - 12:00 Patient Congress Symposium 2
Dr. Mary-Carmen Amigo ABC Medical Center, Mexico City, MX - Lupus and the heart: What are the
risks and how can we lower them?
Dr. Eloisa Bonfa Sao Paulo BRAZIL - What does cholesterol have to do with lupus and what can
we do about it?
Dr. John Harley, Oklahoma Medical Research Foundation, Oklahoma - Genes and Lupus: What do we know
at this point and how can we learn more?
12:30 - 13:30 Boxed Lunch Pickup
Location: Exhibit Hall B
13:30 - 15:30 Cafe Scientific 2
Moderator: Dr. Paul Fortin,University of Toronto, Toronto Ontario CA
Speakers: Dr. David Isenberg, University College, London UK, Dr. Jill Buyon, New York University, New York, NY USA
Dr. Jan Dutz University of British Columbia, Vancouver BC, CA
Update on progress in lupus with focus on answering questions from the audience
16:00 - 17:00 World Lupus Organization discussions: Preparation of Report for
presentation at the Saturday All Congress Wrap Plenary
18:00 - 21:00 Potlatch Reception - All Patient Congress Delegates and Scientific
Congress delegates will celebrate advances in LUPUS research and care worldwide together
Location: Ballrooms A,B,C
Sunday, June 27th 2010 - All delegates of the Patient Congress
and the Scientific Congress Combined
10:00 - 12:30 Review of Progress Since Shanghai, Workshop Reports & Awards
Location: Exhibit Hall A
We have been asked to attend the combined Year in Review with the entire Congress
and the Patient Voluntary Groups will be asked to present a short report of progress and plans for
international collaboration for the next four years. There will also be progress reports by the
International global initiative groups.
12:30 - 14:30 Industry Course 3
Location: Ballrooms A,B,C
Patient Congress Delegates and Scientific Congress Delegates are invited to hear lectures on
Quality of Life and Lupus sponsored by UCB Pharmaceuticals. This course will be given in understandable
English and lunch will be provided at no charge to the delegates.
Walk Together for Lupus
Friday June 25th, 2010
6:00AM - 6:45AM
Do you want to do something meaningful for and contribute to the world-wide fight against lupus?
On Friday AM, June 25th, make your statement about the importance of lupus. Start the day with a
demonstration of support for persons with lupus by walking along Vancouver’s Seawall. Enjoy a coffee or
hot chocolate, get some exercise, participate in the comeraderie of the international lupus community
and be invigorated by the panoramic views of the harbour and Stanley Park at sunrise.
All registered participants of LUPUS2010 are welcome; persons with lupus, scientists, clinicians,
trainees, family, and friends are encouraged to join the Walk to make the statement that we need better
recognition of the impact of lupus on the lives of affected persons and their families as well as new
treatments and better access to care for people with lupus worldwide – now!
Meet at 6:00 AM for coffee or hot chocolate at The Vancouver Convention Centre Lobby. It’s not a race;
everyone is a winner in this Walk. You can walk at your own pace (or come in a wheelchair) beginning
at 6:15 AM and be a part of something special. The Walk may seem like a small gesture, but it
symbolizes that there is strength in walking together toward the goal of a cure for lupus.
 |
